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Hello Everyone,
My partner's daughter, Jennifer von Beck,
tragically died a year and a half ago at age 23.
She died when she was only 2 months pregnant from
a blood clotting disorder called Factor 5, or
Leiden's disease. Blood clotting disorders are the #1
pregnancy related cause of death, and often the only
symptom is sudden death.One in twenty pregnant women
will develop Factor 5, yet women are rarely informed
of the risk for it. Ironically, this disease is
easily found by a simple blood test and is easily
treatable with no risk to the fetus. If Jennifer
had been informed about the risk and/or able to
afford health care, she may have been diagnosed
in time.
Jennifer was an only child and she left behind
her wonderful fiancee, her parents, grandparents
and many friends and family. Our grief is intense,
and of course we want to help others avoid this
kind of devastating loss. There are at least two
things you can do to help:
#1
Please, if you know anyone who is pregnant or
is planning on becoming pregnant, make sure
they are tested for blood clotting disorders!
Again, a simple blood test may help avoid
disaster.This is very serious,a matter of life
or death! If we had known of this risk, we
might still have Jenn and her baby.
#2
Please help everyone have access to
health care! Over 18,000 uninsured people in the
United States alone die each year from preventable
causes, and 585,000 women each year worldwide die
from complications from pregnancy. Please ask your
senators and congress people to stop funding wars
and to start to take care of our people! Only 5%
of the military budget would be enough to provide
health care for everyone in our country.
Thank you for reading this and for any action you
are moved to take on Jenn's behalf. It eases our
loss to know that someone else's life may be saved.
Here's to hoping and working for national and world-wide
health care and the avoidance of preventable tragedy.
Health care is a family value.
Tell Congress to pass H.R. 676 Now
Take Action Now
More information can be found, and contributions can be made at:
APS (Antiphospholipid Antibody Syndrome) Foundation of America
and
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In memory of Jennifer Nichole von Beck
Born 4/23/1982
Died 1/23/2006
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